I simply want everything I do to be an act of worship to God. ********************EVERYTHING******************** like a spider's web, intricately woven, the threads of our lives are entwined, making us who we are, where we are, at this time in history.... here's a small record of one family's journey to love God

Tuesday, April 3, 2007

Total Intestinal Aganglionosis What?

Have you noticed the cute little picture of Aria in my sidebar?

Aria was born with a very rare condition of the bowel known as total intestinal aganglionosis or total Hirschsprung’s disease. There is no cure and it means she will never be able to digest food.....unless she has a bowel trasplant, which can only be performed in the US at a cost of $1-2 million dollars. Aria's family is part of The Nappy Network and as a community we are all pulling together to try to give her a bit of a break.....

Pippa from Snazzipants is running an auction at her shop opening on Friday the 20th of April.

You can purchase this cute little newborn soaker and hat set knit by yours truly if you turn up at 145 Kitchener Road, Milford at 4pm. All proceeds go to Aria's family. There will be lots of other things for sale too;-)


Mama Monk said...

Hi Rach!
I just gave you a "Thinking Blogger Award." Come check it out at my site:).

Jen and family said...

Im praying for Aria
and hope the sale is successful
Jen at http://jenz.wordpress.com/